Rare Disease Day Quiz 2021
The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to treatment options.… Read more »
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Medicine
Latest Medicine posts
CDER’s Progress in Rare Diseases
Orphanet Journal of Rare Diseases is proud to present this piece, authored by the Rare Diseases Team within the U.S. Food & Drug… Read more »
More Medicine posts
Rare Diseases – a Research Priority for Everyone
In this blog, Dr. Anne R. Pariser (Director of the Office of Rare Diseases Research, at the NIH's National Center for Advancing… Read more »
Journey of a rare disease patient
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
Exercise Capacity Restored by Yoga in LAM
Patients with LAM (lymphangioleiomyomatosis) or other rare lung diseases can lose their exercise capacity because of dyspnea and… Read more »
What challenges have presented in a global pandemic?
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
What is Leigh Syndrome? If you had MS, I could help you
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
MIRRORS: robotic surgery for advanced ovarian cancer
In a blog for Ovarian Cancer Awareness Month, Christina Uwins and Simon Butler-Manuel discuss the MIRRORS study registered at the… Read more »
Mapping out the treatment of breast cancer-related brain metastases
In a blog for World Cancer Day, Dr Vinton Cheng and Dr Amy Kwan discuss the PRIMROSE audit registered at the ISRCTN registry.
A ray of HOPE: digital self-management for people living with cancer during COVID-19
In a blog for World Cancer Day, Dr Hayley Wright discusses the digital HOPE programme for people living with cancer during… Read more »