A Map for Drug Discovery
Benoit Coulombe and Marie-Soleil Gauthier of the Montreal Clinical Research Institute (Montréal, Canada), discuss the Rare Disease Cell Map, the Open for Rare website.
Monthly Archives: February 2020
Rare Disease Day Quiz 2020
The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to treatment options. We’ve rounded up a few new interesting facts and research about rare diseases. Find out how much you know, and share your results with us @OJrarediseases and use #RareDiseaseDay.
Dual Deprivation for Rare Disease
This piece, our final runner-up entry in Findacure and Medics4RareDiseases’ “Student Voice” contest, speaks to the need to understand the psychological burden that co-exists with the physical struggles in individuals with rare diseases, and their caregivers. **Please note: due to space constraints, the “Student Voice” blogs appear in condensed form. (the full-length versions which were submitted for the contest, can be found here).
No Country for Healthcare Equity
The diagnosis and delivery of treatment for rare diseases can vary greatly between different populations or groups within the same country. This piece, a runner-up entry in Findacure and Medics4RareDiseases’ “Student Voice” contest, compares and contrasts the experiences of two different groups within a country and explores the reasons underlying the inequities of healthcare provision. **Please note: due to space constraints, the “Student Voice” blogs appear in condensed form (the full-length versions which were submitted for the contest, can be found here).
Improving Rare Disease Recognition Via Medical Education
This piece, a runner-up entry in Findacure and Medics4RareDiseases’ “Student Voice” contest, explores how current methods of medical education may contribute to rare disease diagnosis and what changes could be made to improve the experience of those living with a rare disease. **Please note: due to space constraints, the “Student Voice” blogs appear in condensed form. form (the full-length versions which were submitted for the contest, can be found here).
Mapping travel time to health facilities allows countries to prepare for new outbreaks
We analyzed travel times to health care facilities for populations at risk for viral hemorrhagic fevers in 43 sub-Saharan African countries