CDER’s Progress in Rare Diseases
Orphanet Journal of Rare Diseases is proud to present this piece, authored by the Rare Diseases Team within the U.S. Food & Drug… Read more »
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Rare Diseases – a Research Priority for Everyone
In this blog, Dr. Anne R. Pariser (Director of the Office of Rare Diseases Research, at the NIH's National Center for Advancing Translational… Read more »
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Journey of a rare disease patient
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
Exercise Capacity Restored by Yoga in LAM
Patients with LAM (lymphangioleiomyomatosis) or other rare lung diseases can lose their exercise capacity because of dyspnea and… Read more »
What challenges have presented in a global pandemic?
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
What is Leigh Syndrome? If you had MS, I could help you
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
MIRRORS: robotic surgery for advanced ovarian cancer
In a blog for Ovarian Cancer Awareness Month, Christina Uwins and Simon Butler-Manuel discuss the MIRRORS study registered at the… Read more »
Mapping out the treatment of breast cancer-related brain metastases
In a blog for World Cancer Day, Dr Vinton Cheng and Dr Amy Kwan discuss the PRIMROSE audit registered at the ISRCTN registry.
A ray of HOPE: digital self-management for people living with cancer during COVID-19
In a blog for World Cancer Day, Dr Hayley Wright discusses the digital HOPE programme for people living with cancer during… Read more »
Global solidarity: World AIDS Day 2020
For World AIDS Day 2020, this blog takes a look at studies registered at the ISRCTN registry during the previous 12 months.