The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to treatment options.… Read more »
Orphanet Journal of Rare Diseases is proud to present this piece, authored by the Rare Diseases Team within the U.S. Food & Drug… Read more »
In this blog, Dr. Anne R. Pariser (Director of the Office of Rare Diseases Research, at the NIH's National Center for Advancing… Read more »
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
Patients with LAM (lymphangioleiomyomatosis) or other rare lung diseases can lose their exercise capacity because of dyspnea and… Read more »
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
Orphanet Journal of Rare Diseases is proud to present this piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student… Read more »
Benoit Coulombe and Marie-Soleil Gauthier of the Montreal Clinical Research Institute (Montréal, Canada), discuss the Rare… Read more »
The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to… Read more »
This piece, our final runner-up entry in Findacure and Medics4RareDiseases' "Student Voice" contest, speaks to the need to… Read more »