In recognition of Rare Disease Day, Orphanet Journal of Rare Diseases Editor-in-Chief Ségolène Aymé discusses the importance of research in working to cure… Read more »
Ségolène Aymé is a medical geneticist and the founder of Orphanet – a portal for information on rare diseases and orphan drugs. She is also the chair of the Topic Advisory Group on rare diseases at the World Health Organization, as well as European Union Committee of Experts on Rare Diseases. Dr. Aymé and is the editor-in-chief of Orphanet Journal of Rare Diseases (OJRD).
Latest posts by Ségolène Aymé (see all)
- With research, possibilities are limitless- Rare Disease Day, 2017 - 27th February 2017
- Are combinations of re-purposed drugs the answer for treating rare diseases? - 19th December 2014
In this blog post, Ségolène Aymé talks about a recent study published in the Orphanet Journal of Rare Diseases, where she is Editor-in-Chief, that could show… Read more »