Rare Disease Day occurs annually, on the last day of February. It is an awareness day meant to increase cognizance and spark conversation among decision-makers, the public, and patients about rare diseases and the effects they have on lives. Take our quiz to see how much you know about rare diseases and to discover some things you might not know.
Monthly Archives: February 2018
Collaboration is helping medical professionals and patients with rare diseases to face their challenges
In this blog to mark Rare Disease Day, George Wood, medical student at the University of Birmingham and one of the winners of Findacure’s annual Student Voice essay contest, discusses the barriers that are challenging patients, clinicians and researchers when it comes to rare diseases.
Raising the flag for orphan diseases: opportunities and challenges for medical students and researchers
In this blog marking Rare Disease Day, Rupa Kumar, 5th year medical student at the University of Cambridge and one of the winners Findacure’s annual Student Voice essay contest, shares her views on how more students and researchers can get involved in the research and treatment of rare diseases and challenges that need to be overcome in doing so.
To ensure that randomized control trials live up to their gold standard status, the reporting must be accurate and detailed. With new guidance being introduced like CONSORT extensions and TIDieR we would probably expect to see improvements in reporting standards, but is this actually the case? Research published today in Trials explores this by looking at the quality of reporting in trials testing drug adherence strategies before and after the introduction of the CONSORT extension.
Research Involvement and Engagement is an interdisciplinary, health and social care journal focusing on patient and wider involvement and engagement in research, at all stages. The journal is co-produced by all key stakeholders, including patients, academics, policy makers and service users.
In the UK, the top three priorities in research methodologies for clinical trials have been identified as boosting recruitment, retention of participants and choosing outcomes to collect. But are these priorities the same in the rest of the world? In an effort to explore this, research published today in Trials surveyed researchers who have experience in trials in low to middle income countries. Here the authors tell us more.
February 4th is World Cancer Day, a global event that aims to save millions of preventable deaths each year through education, calls for action, and raising awareness. In this guest blog, Matt Lam from Worldwide Cancer Research shares how the charity is using collaboration to fund global research and the importance of publishing this research in open access journals like BMC Cancer, BMC Medicine and Molecular Cancer.